Neuroscience

Articles and news from the latest research reports.

27 notes

Film explores struggles with rare diseases
There may be only a few thousand people in the United States who suffer from Hermansky-Pudlak syndrome, a disease so rare that most doctors have never even heard of it, much less know how to treat it.
But this very unusual condition is the focus of a documentary airing on public television this weekend, made by two Stanford filmmakers who are trying to draw attention to the plight of patients who suffer from rare diseases.
The documentary “Rare” airs at 6 p.m. Sunday on KQED. For more information about the film, and to see a preview, go to www.rarefilm.org

Film explores struggles with rare diseases

There may be only a few thousand people in the United States who suffer from Hermansky-Pudlak syndrome, a disease so rare that most doctors have never even heard of it, much less know how to treatĀ it.

But this very unusual condition is the focus of a documentary airing on public television this weekend, made by two Stanford filmmakers who are trying to draw attention to the plight of patients who suffer from rareĀ diseases.

The documentary “Rare” airs at 6 p.m. Sunday on KQED. For more information about the film, and to see a preview, go to www.rarefilm.org

Filed under Hermansky-Pudlak syndrome rare diseases albinism documentary genetics neuroscience psychology science

  1. writinginthewoods reblogged this from neurosciencestuff
  2. scitechs reblogged this from neurosciencestuff
  3. raindropsprelude reblogged this from neurosciencestuff
  4. my-xxx-comics reblogged this from neurosciencestuff
  5. quasiwantedcup-pies reblogged this from neurosciencestuff
  6. circusanimal reblogged this from neurosciencestuff
  7. kammartinez reblogged this from neurosciencestuff
  8. shineofcolorspurple reblogged this from neurosciencestuff
  9. stinkyhairyhippie reblogged this from neurosciencestuff
  10. hippieheartnmind reblogged this from neurosciencestuff
  11. spittingunicorns reblogged this from neurosciencestuff
  12. withlove--mel reblogged this from neurosciencestuff
  13. neurosciencestuff posted this
free counters